New
England Journal of Medicine
May
2, 1996 Volume 334, Number 18
BOOK REVIEW
A
CHOSEN DEATH: THE DYING CONFRONT ASSISTED SUICIDE
by
Lonny Shavelson, 240pp, New York, Simon & Schuster
1995
$23
The personality and varied talents of the author -- as journalist,
photographer, and emergency room physician -- are evident in this remarkable
book, which presents moving and thought-provoking accounts of assisted death and
the decisions faced by five people. These
detailed stories of the ending of life, in which the author plays the parts of
witness, confidant, and participant, show the complexity and moral ambiguity of
assisted death.
Shavelson's book challenges the simplistic thinking characteristic of
much of the debate on this subject. On
the one hand, the claim that those who resort to this option are taking the easy
way out, seeking death without enduring terminal suffering, is belied by the
stories of Renee and Mary. Both
suffer from cancer, pursue and endure repeated aggressive efforts at cure or
remission, including experimental therapy, and opt for assisted suicide by
ingesting a lethal dose of medication only when they view lingering to the
bitter end as intolerable. On the
other hand, those who advocate assisted death as the right of self-determining
adults should be given pause by the story aptly titled "Freelance
Euthanasia." Gene, a mildly
disabled retired cook, lonely and depressed, requests information from the local
chapter of the Hemlock Society. Sarah,
the chapter president, responds by aiding Gene's suicide, procuring medication
and applying a plastic bag.
The notion that patient-initiated assisted suicide is superior to doctor-initiated
active euthanasia is challenged by Shavelson's documentation of the difficulty
dying patients have in accomplishing the former.
After an overdose of liquid morphine, Renee lapses into unconsciousness
but continues to breathe for nearly 12 hours, before a friend completes the deed
by placing a plastic bag over her head. Mary,
near death in a cancer ward, manages a final act of will to repress vomiting
after swallowing an overdose of barbiturates.
If physician-assisted death ought to be permitted subject to adequate
safeguards, then voluntary euthanasia by a physician giving a lethal injection
in response to a patient's well-considered request -- the preferred means in the
Netherlands -- may be better.
Shavelson's narratives make clear that there are no hard and fast rules
stating when assisted death is appropriate.
In some instances a request for it is irrational or premature; in others
the request makes sense in view of the dire situation and the lack of reasonable
alternatives. Assisted death is not
a solo act, but a fateful transaction between persons.
A critical element in the negotiations surrounding it is a careful
assessment of the person's condition, his or her relationships with family and
friends, and the available options.
In the final chapter, "Hospice and Hemlock: A Plan," the author
departs from the narrative style to advocate a policy for physician-assisted
death that combines the hospice and Hemlock Society approaches.
The hospice movement to date has subscribed to the maxim of neither
prolonging not hastening death. Its
partisans have contended vocally that this mode of palliative care obviates the
need for physician-assisted death. Shavelson
supports hospice; the story of Pierre, a trapeze artist who died of AIDS, shows
how competent hospice care can help people have a good death in the face of
great suffering. However, after
witnessing the deaths described in the book and interviewing hospice clinicians,
Shavelson argues that hospice care does not always ensure a good death.
All dying patients should have access to such care, and
physician‑assisted death should be made available only as a last resort.
The final chapter is more a sketch than a fully developed plan, still
needing the eligibility criteria for assisted death and procedural safeguards to
be fleshed out, but it offers a promising framework for an ethically justifiable
policy.
Conspicuously absent from A CHOSEN DEATH is a detailed examination of the
role of physicians in negotiating and participating in assisted death.
Perhaps in the future Shavelson will devote his considerable talents to
disclosing the ways physicians caring for dying patients have confronted this
deeply controversial issue.
Franklin G. Miller, Ph.D.
University of Virginia
School of Medicine
Charlottesville, VA 22908